Flint, Mommy, and Galen

Flint, Mommy, and Galen

Wednesday, May 13, 2015

Update 5-13-15

Well, it turns out, the pizza thing was NOT a breakthrough. He quickly returned to only eating cheerios.

Yesterday we saw a neurologist. She asked why we were referred on the paperwork and I said I had no idea, so she read over the paperwork so far, and she came in and said she had no idea either. On the other hand, she did know that the genetics tests we had had come back and showed all normal. The only thing she wanted to test for had already been tested for in that genetics blood workup. She went ahead and consulted with an older guy who I'm guessing had more experience though, just to be certain, and he thought we should have more thorough genetics testing done (apparently we didn't have the most thorough one to start with), along with an MRI to see if they can figure out why Galen developed Autism. He also mentioned that Galen's head is smaller than expected and he's a bit thin.
EDIT: She wants him to have a hearing test done (a proper one), just in case.

The neurologist lady was the 2nd professional to tell us that Flint's perfectly fine. Apparently she could tell that just from the few mins of watching her while evaluating Galen. She kept smiling at us, engaging us, and even reached for the lady's hand when she put it in front of her to shake it (after shaking mine and Mazzu's hands).

Today we had a therapy evaluation from Cole Pediatric Therapy. It's determined that Galen is about on par for physical therapy, so nothing needs working on for that at the moment. He'll be receiving occupational and speech therapy twice a week, Weds and Thurs's for 1 1/2 hours, starting in June. His speech evaluation showed him to be in the 50-60 range when he should be in the 80-100 range. Basically, he's VERY far behind in speech. I wish I had followed my instincts last year, but then he spoke and showed he still knew how, so I didn't. I can't fix that, but I know my instincts are important to follow.

One unfortunately "fun" thing to come...cold turkey on pacifiers. Galen's teeth are getting a little messed up and is causing some issues with his speech. It seems he does have a bit of a tongue tie, but is saying the sounds he wouldn't be able to if it needed fixing according to the speech therapist.

Tomorrow we see the dentist for both kids. Galen's 6 months behind and has only seen them twice. Flint's 2 months behind and still has no teeth and hasn't seen them before. Expecting it to be fun.

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