Flint, Mommy, and Galen

Flint, Mommy, and Galen

Tuesday, January 19, 2016

Short update

Today I took the kids outside by myself. They both wanted to go outside, so it was fair to take them. Unfortunately, Galen ran into the street twice and I had to chase him a lot the second time to catch him before he could get hurt. We came inside instantly. This didn't go over well with either kid, nor my bronchitis, but safety first.
I really think we'll have to invest in a fence for the front yard, given Galen's afraid of the back yard. I don't understand why, but I tried to take them in the back yard first, and all he did was cry.

Monday, January 11, 2016

Start of 2016 Update

Galen turned 3 December 8th. We had a great party at the park for him. He didn't care for the gifts and just wanted to run around. It was a great time.



Christmas was...fun. Neither kid understands what Christmas is, but we did it anyway. The reasoning for calling it fun is that Galen came down with a bad cold the night before Christmas Eve and Flint came down with it Christmas Day. Mazzu's family dropped off bbq for Christmas Eve. On Christmas Day, we went to a restaurant with my mom and step-dad and Galen was miserable. He screamed and cried and it was a horrible time. But after he had a nap, which is highly unusual, especially a 2 hour one, he woke up feeling better and had a decent time at their house. We came home with a ton of new toys (the ones that are kept there, so not technically new per say). Mazzu caught bronchitis. And so, for a good week and a half or so, everyone in the house was miserably sick. Not the best of times, to say the least.

For bedtime, we now have a pretty decent schedule. A melatonin around 8pm, an hour or so later, the medicine and brushing teeth. We've brushed teeth once a night, every night, for 2 months now. Bedtime is immediately after medicine and brushing teeth. They've been sleeping from 9pm to 8:30am (or thereabouts) pretty much constantly since we started this schedule. It seems to be going really well.

He's recently begun chewing his fingers constantly again. I've sat in on his therapy a couple of times and have discovered a few things that we realistically need to help him, but can in no way afford.
As an example, there's a wood platform swing that Galen really loves in therapy and there's a gymnastic-like mat that goes under it (in case he falls off). While we can get on without one, it would apparently be incredibly important to have access to such a swing because it would help his "core muscles" in his stomach that are apparently way too weak by making him straighten himself out (sitting up or laying on it).
Another example is that we would really benefit from some sort of AAC machine (probably an actual Ipad with an expensive program designed to help non-verbal people communicate).

In general, there's not much new news right now. Just same ol' same ol'.



But, I did create a GoFundMe in an effort to help. I hate asking for donations, but this is for my son.